To maximize its impact, the lobbying organization establishes relationships in neighborhoods and involves residents in its advocacy work.
“The more people involved, the greater the impact on the lives of cancer patients,” he said.
One ACS CAN legislative ambassador and Brooklyn resident is Grace Charrier, a breast cancer survivor.
“I had no symptoms whatsoever,” Charrier said. “I fell in my bathroom, which led me to the hospital. My blood pressure was very high.”
After a series of tests, the cancer was discovered. She was Stage 3.
“I was in my mid-forties but had never gone for a mammogram,” she said. “Unbelievably, my doctor never sent me.”
At the time, Charrier held down a demanding job and lived a busy life.
“It was shocking,” she said. “No one expected it. I didn’t feel sick. I thought I fell from fatigue.”
Charrier’s illness inspired her to raise awareness.
“It brought me to work with ACS CAN,” she said. “Prevention is the cure.”
Charrier is very vocal about her experience and wrote a book about it. She calls Sandusky the brother she never had.
“Anthony is a gem,” she said. “He’s empathetic and listens. He doesn’t act like he knows it all. I love our legislative task meetings.”
Another Brooklyn resident and breast cancer survivor, Angela Padmore, has also started to lobby for ACS CAN.
“You don’t realize how many people are affected by the disease,” Padmore said. “It doesn’t matter your race, religion, or color. Cancer brings everyone together in one form or another. Life is more important than anything else. We take so much for granted.”
Padmore was terminated from her job in the automotive industry when she was ill.
“They wanted me to come back to work, but I couldn’t give them a specific date, so they let me go,” she said. “One of the bills we’ve been trying to pass is the paid medical leave act bill, so cancer patients and their families can take off from work and not be reprimanded.”
Healthcare in chaotic times
With recent cuts to Medicaid funding and political upheaval, ACS CAN’s efforts are facing stronger headwinds.
“We’re lobbying our state governor to allocate for those people getting cut by the federal government,” Sandusky said.
Every September, ACS CAN lobbies in Washington, D.C. with special representatives from around the country, Puerto Rico, and Guam. Regardless of the current circumstances, this year was no different. Sandusky and his team lobbied members of Congress to increase funding for the National Institutes of Health, National Cancer Institute, and Centers for Disease Control and Prevention.
They also lobbied for an extension of healthcare tax credits—a result of the Affordable Care Act—which expire at the end of the year. Although this year was more difficult than most, “we feel our grassroots efforts will be impactful in the days to come and into the future,” Sandusky said.
Regardless of the political situation, Sandusky and his team will continue to advocate for access to proper healthcare.
“We are nonpartisan,” he said. “Everyone has been impacted by cancer.”
Ultimately, Sandusky feels hopeful by the diversity of volunteers who continue to stand up and make their voices heard.
“We have people from all kinds of backgrounds, upbringings, and environments,” he said. “Everyone is still showing up. We all have more power than we realize, especially when we come together. We must all come together. This is about all of us.”
Lauren Yanks ’19 M.Div. is a writer, professor, and founder of the Blue Butterfly Foundation, www.bluebutterflyfoundation.org(Link is external), a nonprofit organization that rescues and educates women and children who’ve been trafficked and enslaved.